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Our Journey with Usher Syndrome


 Posts about our experience (thus far) with two children with Usher Syndrome type 1b

 Is She Deaf?
In the Beginning, There Was Silence
Two Years of Sound
The Beginning of Charity
Deaf Like Me
Round Two
The Way It's All Going to Go Down
We're Back (Pia Surgery Recap)
Joyful Noise
 Happy Birthday Sounds Good
No Limits
The Swing of Things
Let Go
Fruits
No Turning Back 
To Boston, To Boston
Experiencing the International Symposium on Usher Syndrome and Family Conference 

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Anne
Three kids, 2 mutations of Myosin7A, one husband, and zero time management skills. Just making it up as I go along.
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