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Our Journey with Usher Syndrome
Our Journey with Usher Syndrome
Posts about our experience (thus far) with two children with
Usher Syndrome type 1b
Is She Deaf?
In the Beginning, There Was Silence
Two Years of Sound
The Beginning of Charity
Deaf Like Me
Round Two
The Way It's All Going to Go Down
We're Back (Pia Surgery Recap)
Joyful Noise
Happy Birthday Sounds Good
No Limits
The Swing of Things
Let Go
Fruits
No Turning Back
To Boston, To Boston
Experiencing the International Symposium on Usher Syndrome and Family Conference
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